Our Story
Grayson was born in September of 2023. He immediately had his family smitten. At four months old Grayson was diagnosed with PCH2a, a severe life limiting neurological genetic disorder that affects the TSEN54 gene. It became clear quickly that life would look a lot different for Grayson and his family.
Our Inspiration
Despite his physical limitations, Grayson’s adventurous spirit made it clear movement and the outdoors were his happy place. His joy was contagious, and always worth the extra steps necessary to make it happen.
Something as basic as swinging, may be out of reach to many children with disabilities. However, with the proper equipment, we can make this simple joy accessible to children of all support needs.
Play with Gray
Biking became a highlight for Grayson and the entire family. As Grayson grew, we had to adjust and adapt our biking setups to support Grayson and his needs.
Following complications from his condition, Grayson passed away in May of 2026. His loss left a huge hole, but also a huge inspiration. Grayson’s life opened our eyes to the many needs within our community.
All children need access to outside in order to thrive. For most, that means opening a door and walking outside. For many others, the steps to enjoy nature take resources many families can’t afford. The Grayson Clark Foundation aims to close that gap and get more kids outside in spite of any physical limitations.
